RE: Warning: Long, Boring, Personal reply (was Re: MCSE Salary Query)

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From: Sandworm (anonymous_at_discussions.microsoft.com)
Date: 05/28/04 

Date: Fri, 28 May 2004 13:16:03 -0700

Fris,

Hey there actually I have some tips for you regarding the cost of
private schools in Florida as well as some things you might want to
consider regarding the speech and stuff, that you guys can do. My son
has also been seeing speech, occupational and physical therapists for
a long time. We have a neighbor who's son has autism so just let me
tell you something, if that's what your son's turn out to have it's not
so bad as you may be anticipating. He's a really cool little kid and
he is a wiz at the PS2, actually the little rat beat me last time we
played Spiderman the Movie for PS2. My son with down's has small
hands so he hasn't quite got the hang of the controller yet but it hasn't
stopped him from trying, problem is he likes the sports games (football
and hockey) and their a little more complicated to play.

Drop me a line at sandworm999 at hotmail dot com and we'll be able to
get into it a lot better than on here (I mean I'm sure we're probably
boring most out there).

But I'm in Orlando, so the schools here are a little bigger if your in a
smaller town with schools with small class sizes your in a better
situation. But they do have programs in regards to getting money
for private schools for kids with special needs in FLA so drop me a
line and we'll discuss amongst ourselves, to paraphase Linda
Richmond aka Mike Myers.

And I actually used to play quite a mean game of disc golf, haven't
played in a long time though. So hopefully I won't be as lame a
partner as you were anticipating. But I may need to borrow a disc
as all the one's around here now are for little hands.

C-ya Later,
Ed.
     
     ----- Frisbee® wrote: -----
     
     Sandworm wrote:
> Neil and Laura,
>> My son is what would be termed as high functioning, he goes
> to a private school (because the state school system in FL. sucks
> and they were just doing nothing for him, ie-setting low standards).
     
     Eek, please don't scare me about the FL state school system. I can't afford
     private.
     
     Ed, you and I have a lot more in common than I thought. I have twin sons,
     who turned six last March. While they don't have Down's, they are
     developmentally delayed. I was out from work yesterday because they're
     undergoing yet another battery of exams, in the hopes of determining what
     label will be slapped upon them.
     
     We first noticed problems with out boys when they didn't walk until fifteen
     months. My wife's son from her previous marriage walked at nine months.
     This set off a few alarms, but nothing major. Then at age two, they still
     had virtually no spoken words. Twin B actually had a couple of words at
     about 1 1/2 ("Bear Book") but only used them for about a month, then nothing
     again. We were terrified that our boys might be autistic (and still haven't
     completely ruled that out). At my wife's urging, our Ped finally arranged
     for them to have an evaluation at the age of 2 1/2, and they were deemed
     "developmentally delayed" and entered into FL's program(s). They attended
     the ARC (which I think is the Association for Retarded Citizens) at that
     time, and until the age of three, when they were evaluated again (same
     results) and were admitted to the regular FL school system (pre-K). We'd
     seen a neurologist (who seemed rather annoyed with us - no help at all) and
     a geneticist, who told us he was certain that their problem was genetic, he
     just didn't know what, and wanted us to come back in a year, and Twin B has
     had an MRI and been diagnosed with mild PVL (periventricular leukamalasia
     (or some similar spelling)). They spent two years in pre-K and are now
     finishing their last days of Kindergarten, and both boys will be admitted to
     1st grade this fall (mainstream). Scares the hell out of my wife and I
     because we know how far behind they are. They've been getting speech and
     occupational therapy for years now, and are improving, but we really wonder
     if they can keep up at all in 1st grade. Both boys know their numbers,
     colors, ABC's, etc. that kindergarteners need to know, they can even
     sound-out words to some extent. Both are verbal, but so far behind the
     others, it's painful.
     
     Their speech therapist recommended them for this summer program at the
     University of Florida, and we've been going to meeting after meeting where
     they're being seen by hearing and speech specialists, psychologists, and
     another neurologist (this one is good, though). We think that come this
     Tuesday, we will FINALLY get some kind of answers as to what is causing our
     boy's delays. We already learned something from the hearing exams - that
     Twin B apparently has an auditory processing disorder. He hears fine, but
     it's not being processed correctly.
     
     Funny thing is, before my boys were born, I was totally uncomfortable around
     people with "special needs." To be honest, they gave me the creeps! That
     all changed when my kids were born, and there were some classmates in their
     pre-K who did have Down's Syndrome. I just want to hug those kids now
     (okay, I'm getting too mushy here).
     
     Give your son a big hug for me. Where in Florida are you? Maybe we might
     could meet up one day. I'll teach you disc golf!
     
     --
     Fris "Disc golfers never lose their balls" bee®, MCNGP #13
     
     The MCNGP Team - We're here to help!
     http://www.mcngp.tk
     
     Certaholics
     http://groups.yahoo.com/group/certaholics
     
     

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